Gallery with title and excerpt

Clover, Emily and Spencer

Clover was diagnosed with Aicardi Syndrome at 12 weeks old. We had become aware that

Lisa & Cole

I am Lisa mum of two beautiful boys Dylan age 10 and Cole age 8.

Julie & Alexa

Alexa is age 8 but started seizing really badly age 6. She ended up hospital

Vera & Ava

What would you do to save your child? When Vera Twomey’s daughter Ava was diagnosed

Rachel, Craig, Ross & Bailey

This is Our Life. At 2 1/2 years old we woke to the sound of

Ilmarie Thomas & Eddie

In January 2016, at 7 months, Eddie was diagnosed with a rare and catastrophic type

Hannah , Drew & Alfie

When Alfie was born, he spent the first four months of his life in hospital,

Ali, Matt & Charlie

Charlie Hughes turned three in July and was diagnosed with West Syndrome – a rare

Innes, Charlene and Gino

Gino was diagnosed with 1p36 deletion syndrome at 8 weeks old. That came with many




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