Clover was diagnosed with Aicardi Syndrome at 12 weeks old. We had become aware that
Alexa is age 8 but started seizing really badly age 6. She ended up hospital
What would you do to save your child? When Vera Twomey’s daughter Ava was diagnosed
This is Our Life. At 2 1/2 years old we woke to the sound of
In January 2016, at 7 months, Eddie was diagnosed with a rare and catastrophic type
When Alfie was born, he spent the first four months of his life in hospital,
Charlie Hughes turned three in July and was diagnosed with West Syndrome – a rare
Gino was diagnosed with 1p36 deletion syndrome at 8 weeks old. That came with many
